Thursday, September 17, 2015

Being an adult

Its been a while again. I haven't had much to talk about. I'll get to why.

Yesterday, I was bringing my child to school and had this feeling like I was an actual adult. I just turned 27 years old about two weeks ago. Up until that point I felt like I was a ruse of an adult, not sure if I'm normal in that feeling.

Maybe its "old age" (I know, I'm still young) and all. but literally its like that conscious decision. I've got a few grey hairs. I've got some wrinkles, none of that made me feel as "adult" as I did yesterday. The weight of "how did I get here" finally resting on my shoulders. Maybe its the inching close to my one year mark. It could be the scheduling of my first invasive medical procedure (above and beyond physical therapy and medications).

We scheduled my procedure back just after I wrote my last post. I've been trying not to think about it, about whats coming. About being dependent. I feel like I've finally achieved a bit of life. Yes it consists of PT and carting kids to school. I don't mind, I think, in fact, I'd enjoy it even more if I could take Little to the park and make friends.

Tomorrow I'm having injections. Reflecting on everything that has gone on and my own research makes me feel as though they wont work. However my anxiety is so sky high. What if it works? why could things not work out so that I could have LIVED this last year? What if they don't? Are we heading for something more serious? And the thought of another year of this makes me feel so sad.

Tonight I pick up help, and my mother in law is coming. I have read so much about these procedures. Some people they help, some people they don't, and in some cases they cause more pain. We have (through PT) gotten my pain down SO MUCH, I don't want to go back to bed ridden. I don't want the sympathy or the glances. There are so many more complex emotions involved in this than I could imagine- I think than anyone could.

I think, if I compared it to the biggest "medical complication" (s) of my life- the birth of my two kids. that this has so many more unsure emotions, so many more emotions.

Saturday, September 5, 2015

The End of the Beginning - part... I lost count!

My first appointment of the week comes. I literally have spent the weekend in tears. She says again "I really don't know what is normal because you've been in pain so long"

And she has me do these weird routines. That hurt. Shes accelerating not slowing down.

Here is my bind: I have a work place injury. How do you refuse care that potentially could help you when the whole time your provider is being useless?

Well it all works out.

She has me do these moves that use resistance and that I can feel my back hurting. They are to strengthen- not to help the pain- I can see that now. I wish I knew all the names but I don't. The Blonde One encourages me to keep going, keep hurting.

So, I do as best I can. Until the next day, I see my doctor. The case worker is there. We discuss my pain and progress. My doctor pushes injections. I beg them to wait until after Big starts Pre-K so I can have an easier time managing care for them. They give me 3 weeks of PT to get the pain better and then we will see the doctor and schedule the injections.

This brings out some points. My doctor is under the impression that my pain is my Facet Joints- google it, but its a part of the spine. Thing is my pain is not really consistent with that. With facet pain, from what I understand, leaning back will make it worse. Well when my pain got a bit better at the beginning, leaning back pain also went down, but my twisting pain did not go away.

 I have my apprehension about the injections. I kind of feel like I'm being shoved in this direction. I think having a bad physical therapist did not help any. After my appointment I made more and was able to switch therapists- thank god. I also did put in a complaint about the Blonde One. I think I could have handled the personality trait issue if my pain wasn't being ignored.

Funny thing is, her last appointment with me she was all happy and attentive. My fingers are crossed that with the new PT that my pain will go away- or diminish. that way we can hold off with the injections.

Tuesday, September 1, 2015

Trains and Things.

So at my last appointment I asked my therapist if I should be OK taking my sons to a train show.

She says yes, pull the confidence line and all that good stuff.

Well she was right, I did do OK at the show. Part of it was because Big stopped to watch the train displays and Husband was doing most of the manning.

I cant tell you how overwhelming those shows are. We got Big some more trains for his Thomas the Train collection (BoCo, Fire Engine, Scrap car, and Sir Hat in his car) and also got him the start of his model trains we knew he would get into. His "Big Trains"

I learned how to make trees, and how the fanaticism goes. Some of the older generation were very willing to help us with our young conductor (and we are grateful for it) My father is picking out the engine, We have the control, the track, some cars and Big is looking forward to the big day when we put it all together.

This truly marks a bench point I've reached in my treatment. I can get out, they want me to. It hurts to do it, but that little bit of push to see how far I could go (which was no farther than I had been) was enough. It made me feel like I can have life again. Like maybe- there is something after this.

Its not like I ran a marathon or anything. I just walked a fairly small (school gym sized?) auditorium full of trains with my 3.5 year old (and his brother) Both of the kids got very overwhelmed so fast. There was so much input into their brains you could just see sparks coming out of their ears.

I'm still in awe of how I did. Its like tasting freedom. You don't realize how much you are a slave to your body until you count the things you cant do anymore.